Clusters are relentless !

After trying a newer medication, Aimovig once a month for 3 months, I saw not relief at all. I hate to take medications that are not helping me so I stopped the monthly injections. A few weeks later and “out of the blue’, I had nearly 3 weeks of pain free, attack-free time. It was […]

Pain NON-Management

I’ve had numerous surgeries in the past including two total shoulder replacements and four hip surgeries. My most recent surgery was a total hip replacement with the removal of existing titanium hardware installed years ago to ‘postpone total hip replacement’. Removing the existing hardware that was in diseased and damaged bone (My Femur bone) proved […]

Clusters & Surgery

Unfortunately, I’ve had to endure many surgeries over the years, many caused by being forced to take steroids as a last resort to try to stop the multiple daily cluster attacks which gave me the bone disease a vascular necrosis. Providing me with oxygen  would’ve most likely prevented this, preventing the need for so many […]

CGRP – Aimovig

Any other ‘Clusterheads’ try this Aimovig ? I’ve heard about this for many years as it was being developed and studied. It didn’t even have a name yet and was referred to by a number then. The ‘headache specialist’ was very optimistic about it. Now, I’ve heard of at least 1 clusterhead that took it […]

Surgery Denied Due To Clusters & Imitrex Use !

Both shoulders have already been replaced but are clicking, popping and causing pain. The surgeon said he will not do anything until after I have my hip replaced because my hip is also fractured. The hip surgeon said he will not do any work on my hip until I get my #Cluster #Headaches “Under Control”. […]

VIDEO – Cluster Headaches

A video I Just had to share. I agree with all the info on this except for maybe the ‘Preventative’ med part. Verpamil helps some but there are so many that it doesn’t help. There just isn’t a preventative that helps us all. Oxygen is well-known to be helpful with clusters yet INSURANCE STILL DENIES […]

What good is health insurance when …

What good is health insurance (Like Medicare or state Medicaid for those on disability) when your insurance refuses to pay for PROVEN treatments like OXYGEN ?? It blows my mind wondering why is it that Medicare / Medicaid WILL PAY for BRAIN SURGERY, like the experimental and dangerous operation for Deep Brain Stimulation (DBS), but […]

Cluster Headache Diagnosis Criteria – International Headache Society 2018

The International Classification of Headache Disorders 3rd edition There is a very useful set of criteria guidelines for diagnosing headache types when the diagnosis is uncertain, including cluster headaches. This is from the “Classification Committee of The International Headache Society” 2018. READ THE CLASSIFICATION CRITERIA HERE GETTING THE CORRECT DIAGNOSIS CAN LEAD TO BETTER TREATMENTS […]