Clusters are relentless !

After trying a newer medication, Aimovig once a month for 3 months, I saw not relief at all. I hate to take medications that are not helping me so I stopped the monthly injections. A few weeks later and “out of the blue’, I had nearly 3 weeks of pain free, attack-free time. It was amazing !

Did I do anything differently? Had I been eating differently? Was it the changes in weather? I don’t know. I hadn’t done anything differently, changed my diet and weather has never really played a strong role in my cluster attacks. So, what caused me to get such a great break from the attacks? Was it the Aimovig and some sort of delayed response? I don’t know but I decided to start taking it again. I had an injection about 20 days ago but it’s not providing any relief so far.

The attacks were moderately severe when they first started again after my brief (But good) ‘remission’. I was getting the warning I needed and the time I needed to get Sumatriptan into my system which helped prevent attacks from becoming so severe and from lasting any longer than necessary.

That’s all over for now. The attacks are swift and severe. This morning’s attack may heave been the worst single attack that I’ve had so far this year. I woke up at about 5:00 am with what felt like a dagger in my left eye ! I quickly got out of bed and got to my injections. A fast sprint to the bathroom for tissue incase I bled and off to the freezer for an icepack. Before I could even make it back to my bedroom to inject myself, the pain was so intense that I could barely see anymore. I’m sure my eye and parts of my face on the affected side were swollen pretty good. Tears streamed out of my let eye.

AH ! The injection is in at last. What seemed like a very long time to get in me really only took maybe two minutes total. Now the wait for pain relief.

It wasn’t happening quick. The pain got worse and worse until I didn’t think I was going to be able to handle it. Rolling around on my bed, moaning, groaning, cursing and clutching my eye wasn’t working. The icepack was no help. I felt I had to try something else.

I haven’t used heat on my eye for a very long time so I thought I’d give it a try. After all, the pain is not getting better and it just can’t get worse now. It’s “Insane Pain” already ! So I used 2 (clean) folder washcloths and got them soaking wet with super HOT water. This has got to help, I thought.

After 25 minutes had passed, I realized that maybe the Sumatriptan wasn’t working this time for some reason. I was now in the bathroom for the darkness and the quiet. This is where I’d spend the next 20 minutes suffering in agony !

I’m over this morning’s attacks at the moment but it was a grim reminder of how bad these ‘things’ can get. 45 minutes in ‘severe’ pain AFTER using a Sumatriptan injection is not normal for me and has caused me to (Again) worry about the ‘Next attack”, inevitable as it is.

Clusters are relentless ! If you’re out there reading this and you’re getting by just fine with cluster headaches then I’m happy for you. For the rest of us, remember something I tell myself during EVERY attack: “This too shall pass.”. Sometimes I feel like it’s the only thing that really helped me to get thru a vicious attack.

I’m up and afraid to try to sleep again. Sleep is where “The Beast” lives and where he attacks me at so I’ll be avoiding it whenever possible, which really sucks too.

Gotta learn to let it go and try not to dwell on the horrific pain that an attack has caused. Gotta try to find some normalcy out of this medical madness.

If you read this and can relate, contact me and let me know. Do you have to endure such pain too ?


~ Mr Clusters ~


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